Practical issues of the national arthroplasty registry in Slovenia
Abstract
Background: Medical institutions that perform total hip arthroplasties have reached a preliminary agreement to implement the National Arthroplasty Registry in Slovenia (RETEPS) and representatives of different hospitals have founded a project group to facilitate the implementation. Currently there are four hospitals in Slovenia where a standardized questionnaire is used to record the data on total hip arthroplasties but the analysis of the collected data has not yet been performed on the national level. The problem of unifying the collected data, the logistical problems of data analysis, reliable identification of patients in the registry, financial aspects and monitoring of surgeons’ compliance will have to be solved before the registry starts functioning on the national level.
Conclusions: Survival analysis in total hip arthroplasty is only possible if every registry subject is assigned a unique identification code number that subsequently enables regular updates of data on the deceased subjects from the Central Population Registry. In Slovenia the uniform citizen registry code (EMŠO) or the healthcare insurance number could be used for this purpose if patients gave their informed consent for entry of the data in the registry. Optimal organization of the data analysis would consist of gathering the data in different hospitals in the paper form and sending them to the central institution electronically. The data can then be analyzed by a research group consisting of different hospital representatives whereby each hospital preserves the right to access its own data.
Downloads
References
Furnes O, Lie SA, Espehaug B, Vollset SE, Engesaeter LB, Havelin LI. Hip disease and the prognosis of total hip replacements. A review of 53,698 primary total hip replacements reported to the Norwegian Arthroplasty Register 1987–1999. J Bone Joint Surg Br 2001; 83: 579–86.
European Arthroplasty Register [http://www.ear.efort.org/]
Silvester T, Milošev I, Levašič V. Pomen uvedbe registra totalne endoprotetike v Sloveniji (RETEPS). Zdrav Vestn 2004; 73: 489–92.
Robertsson O, Dunbar MJ, Knutson K, Lidgren L. Past incidence and future demand for knee arthroplasty in Sweden: a report from the Swedish Knee Arthroplasty Register regarding the effect of past and future population changes on the number of arthroplasties performed. Acta Orthop Scand 2000; 71: 376–80.
Furnes O, Havelin LI, Espehaug B, Engesaeter LB, Lie SA, Vollset SE. Det norske leddproteseregisteret – 15 nyttige år for pasientene og for helsevesenet / The Norwegian registry of joint prostheses – 15 beneficial years for both the patients and the health care. Tidsskr Nor Laegeforen 2003; 123: 1367–9.
Lucht U. The Danish Hip Arthroplasty Register. Acta Orthop Scand 2000; 71: 433–9.
Espehaug B, Furnes O, Havelin LI, Engesaeter LB, Vollset SE. The type of cement and failure of total hip replacements. J Bone Joint Surg Br 2002; 84: 832–8.
Watkins ND. Comment on »The type of cement and failure of total hip replacements«. J Bone Joint Surg Br 2003; 85: 775–6.
Pedersen A, Johnsen S, Overgaard S, Søballe K, Sorensen H, Lucht U. Registration in the Danish hip arthroplasty registry: completeness of total hip arthroplasties and positive predictive value of registered diagnosis and postoperative complications. Acta Orthop Scand 2004; 75: 434–41.
The Author transfers to the Publisher (Zdravniški vestnik/Slovenian Medical Journal) all economic copyrights following form Article 22 of the Slovene Copyright and Related Rights Act (ZASP), including the right of reproduction, the right of distribution, the rental right, the right of public performance, the right of public transmission, the right of public communication by means of phonograms and videograms, the right of public presentation, the right of broadcasting, the right of rebroadcasting, the right of secondary broadcasting, the right of communication to the public, the right of transformation, the right of audiovisual adaptation and all other rights of the author according to ZASP.
The aforementioned rights are transferred non-exclusively, for an unlimited number of editions, for the term of the statutory
The Author can make use of his work himself or transfer subjective rights to others only after 3 months from date of first publishing in the journal Zdravniški vestnik/Slovenian Medical Journal.
The Publisher (Zdravniški vestnik/Slovenian Medical Journal) has the right to transfer the rights, acquired parties without explicit consent of the Author.
The Author consents that the Article be published under the Creative Commons BY-NC 4.0 (attribution-non-commercial) or comparable licence.